Lupus is a autoimmune disorder that affect mostly black women during child bearing age,it can affect most of the major organs in the body, I wonder are there any fellow lupies reading this,or if you know of any, please reply and maybe we can get a support group started, or if there is one already will someone please let me know. Rememember "health is wealth'

I am gathering info for you and will respond asap.

You can check locally with:
Medical Specialists Center, 16 Fourth Terrace Centerville
Dr. Vincent I. Nwosa Ph 322 1995

You can check abroad with:
National Institute of Arthritis & Musculoskelatal & Skin Disease
Bethesda, Maryland USA
Dr. Stephen I. Katz MD PhD Director Ph 301 496 8190
www.niams.nih.gov/hi/topics/lupus/tengo/english.html

Check these sites for lupus info:
www.lupus.meetup.com
www.geocities.com/heartland/acres/7228/who.html

also yahoo search engine enter the words lupus support group

If I find any other info regarding a support group in Nassau, I will pass it on.
God Bless

Thanks for the info. I am a patient of Dr Nwosa, and I have an attending physician abroad, just wanted to connect with some folks here, the website is nice that u recommended, so thanks again.

Check with Mr Charles Ferguson @ 322 1190 regarding that Lupus support group.

I can't sleep - Figures why I'm online at 4am looking for anything related to anyone with Lupus living in the Bahamas!!!!!

I was recently diagnosed with the disease, three weeks ago and three weeks ago tooo long in ICU!

Thank you very much for this information!!!!!

Sorry to hear of your condition. Stay strong. You are living at the right era in medical advances. With the rapid evolvement of medical technology, including genetics and stem cell research, within a few years there may be medical advances that will help you greatly.

If your research shows that stem cell treatment may help, there are a few stem cell clinics scatted through CALA (Caribbean, Latin America).

This story has drawn my mind to national Health Insurance, and whether Bahamians are entitled to the best medical care in the world, and if the government will allow us to chose our own physicians whether here at home or abroad....

Sorry to hear about your plight. I recently met a cousin of mine who has the desease. Sadly she recenty had to quit her job due the the pain. Good luck with dealing with it. I shall contact her to see if she is interested in starting/attending a support group.

Lupus suppose to be hereditary right? We are still trying to find out how/where she got this desease from.

I can't sleep - Figures why I'm online at 4am looking for anything related to anyone with Lupus living in the Bahamas!!!!!

I was recently diagnosed with the disease, three weeks ago and three weeks ago tooo long in ICU!

Thank you very much for this information!!!!!
Please Please stay in contact with local but more importantly international doctors.
My childhood friend died last year of Lupus...... It was dorminant.. she started complaining about pains and the doctors locally took so long to diagnose her condition..... Lupus was in the advance stages prior to going abroad...

Sadly she never made it and lost her life..

Her death shocked her family and the entire SAC community of 199X.

please stay on top of this...

I can't sleep - Figures why I'm online at 4am looking for anything related to anyone with Lupus living in the Bahamas!!!!!
I was recently diagnosed with the disease, three weeks ago and three weeks ago tooo long in ICU!
Thank you very much for this information!!!!!

My dissertation lab specializes in Lupus research (my work is on Sjogren's Syndrome) and are national leaders in the study of autoimmune diseases. We were among the first to report of the efficacy of using rituximab (a humanized monoclonal antibody (anti-CD20)), originally used for the treatment of lymphomas (cancer), treatment in lupus patients. My PhD advisor is the national chair of research committee for the Lupus Foundation of America. See the link http://www.urmc.rochester.edu/pr/news/story.cfm?id=1443 . The medical center which my school of medicine is a part is hosting a patients seminar this weekend. http://www.urmc.rochester.edu/pr/news/story.cfm?id=2128 . I know the evnt organizer personally, and she is on my dissertation committee. If I happen to find any loose material around I will let you know.

Just out of curiosity Upnorth, are they also doing research in Scleroderma?